| Medical Addendum.... I forgot to mention that Dr Parikh told me about, what he calls, "Parikh Breast Jewelry" ... In area "a", where the mass was against my chest wall, he left a "Ribbon" shape, in area "b" he left an "S". When I asked why the "S", he chuckled a bit over the phone, and said, Superwoman of course! [by mutual agreement prior to the biopsy, we both agreed that leaving the marker in the nipple area would not be good for me re: my FMS /MPS and sensitivity -- that was one of the most amazing things about Dr Parikh, he actually listened, and made no judgements, he just accepted my word and historical experiences with my body and how it reacts]. My Appointment with Dr WaiteHe checked out the healing process, and all is well, but, I took a perverse pleasure, when he first had a look-see, he did a sort of inhaling of breath, and wow, he didn't have a feel for what I went through until he saw it himself. Seeing is believing. And, even he said, something about quitting after #2, then knowing me, said, there was no way you would, right? So that was a positive reinforcement. But, we also did some procedures at the office on Thursday.
I showed him some "bumps" that are making themselves known on the underside of my forearms (is there a name for this part of the body?) and some bumps happening on my hand. We couldn't find an exact match in his books (eeeuuuw, I had to stop looking -- gross) but he asked me if I had ever been checked for SPRUE. It sounded familiar, but there were no bells going off so he decided to take some samples, and some blood and check it out. If it is SPRUE or Celiac's, that could explain my stomach pain all this time!!! When I read about it, apparently there is a genetic predisposition, but it can start at any time, or not, sort of like FMS. So, the very good news is, that this could be the the Dx I am seeking to stop my stomach cramping, and nausea and PAIN beyond the pale!!! The remedy would be totally qluten free diet and no wheat or oats (actually, oats right now are being revisited as maybe ok after all as discussed on some Celiac /Sprue sites on the net). It would mean a HUGE change, but to be of my Rx, and to be able to have NO PAIN again, wow...dare to dream? So, that's the latest. More hope. I'll keep you posted.
OTOH, if this isn't the Dx, then we are looking again at "exploratory surgery" and before doing that, I need to sign up and see if I'm eligible for for the "alternative option" re: ARD, which I found on the net; Clear Passage Therapies. But, again, there is new hope!
Peace!
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