| Ah, releif of sorts. Earlier today I spoke to Dr Khalighi and I like him a lot, and he seemed to actually "hear" more more than most. Brian is out for the week, so having my voice "heard" by someone else is a good thing. I won't go into detail, but he asked a very very astute question after our quite long conversation. "Why is your Mother Here?". That's the $64,000 question. I told him the story in brief. He was sympathetic, and that is goodness. He also knows that I am eager to have Mom come home to the Island, Careage specifically, or, if she is dying, to have her come home, here, with a hospice worker here to help the transition be as easy and homey as possible for her. I also had a Marilyn session, and she always helps me on some level. She told me that "stress" would be if Mom was in a Nursing Home, but this, this is beyond stress. So, I guess I'm hanging in there ok based on the degree of angst I'm going through, because despite everything that has gone wrong, I still manage to put one foot in front of the other, and actually accomplish tasks for Mom, and ask questions, and stay audible via phone, if not present in person. And it takes a lot of repetition, but things do get done if I keep at it, like, yet again, I spoke to the charge nurse scant moments ago, and she is going to write down that Mom needs "mushy food" so she can get much needed nourishmnent. I also found out, that the reason Miralax is never tried, despite my many letter, talks, to staff, Nurses, Social Workers, Doctors, etc. is because the State only allows a certain range of medicine. Miralax is not on the list. I will contact Dr Waite and request a Rx, and bring it to them to use if they can. Also, the boon today, is that I can bring Mom home cooked meals to keep in the "patient fridge". I'm asking Kim to do "goop", which is a "paste" made up of prunes and senna tea, and other goodies that will keep Mom going, and she likes the taste. It could be good on oatmeal or just plain. Right now with no teeth, there isn't much it can go on. I also want to make her, the infamous comfort food, squash souffle. Maybe tomorrow Kim and I can get it done, although Gordy's b'day is coming up fast (Thursday) and gots to celebrate the good things despite the sadness. Cake, Ice Cream, Friends, Family, X-Treme Croquet? But, we can bring foods she actually enjoys, or enjoyed like rice pudding, and oatmeal and fruitsicles and soups and 3-cheese marinara sauce, and cottage cheese, and applesauce and...well it is something
I can DO for my Mom. Yes!!!! They did end up dealing with an impaction, which I was afraid would happen, but let's hope with "goop" and other things, Mom will eat, eat well, and keep going regularly and avoid her kidneys shutting down. The Doctor did ask me today about DNR etc. But, I assured him that IV for fluids if she gets dehydrated is goodness, and besides, it would make giving her some meds pretty easy, and she'll not be upset by it. So if it comes to that, there might be some good with an IV shunt in place. Apparently she just went back to sleep. Her roommate was acting out and very loud per the Charge RN, so Mom was walking around, but did get back to bed, hopefully for some real rest. I love her so much, I hope she can get some comfort from the "good fud" we will bring with us next trip. My toes and fingers are crossed. This can be a step in the right direction in getting her on her 30 day goal, and back home to the Island (knock wood).
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