While I'm doing some reality posts, here's one about my latest Mom visit on Wednesday, and information as of 6:00PM tonight. Mom looked absolutely great. Gordy and I arrived later than usual, and Mom appeared to be dozing or zoning out in the hallway where we look in as we buzz the door. I walked right to her, and one of the other residents warned me not to disturb or wake her else she'll shout -- brave daughter, I didn't heed, and at my kiss and hello Mom, she immediately looked clearly at me and smiled and kissed me right back! Her friend said that she wants to take Mom home, and she told me other stories about how Mom takes her husbands hand when he visits. We smiled etc. and then tried to get Mom to our private room. No amount of cajoling, bribing, encouragement got her there until one gent came over and offered to help her, and she joined hands and came into our room. I later found out it was the husband of the resident I had been speaking to! How lovely! Mom used to make egg salad using a foley mill. Recently I mentioned that to Gordy, so he surprised me with buying one, and so we made egg salad for her, on a piece of Gordy Bread (with no crust - soft is good). It turned out to be a warm time together, and I left feeling separation anxiety (per usual) and some guilt, but glad she looked and seemed so great! Yesterday around 9:00 PM, I got a phone call from her Psychiatrist, Chuck, who told me that Mom had an episode during the evening after I left where she fainted and scraped her knee, but recovered ok. There were concerns about the possibility of her medicine contributing to it, so after about 1/2 hour of our chatting, we made an appointment for this evening, 5:30PM to talk about it. This is just one of the prime examples of the care and dedication WSH has consistently shown to Mom's well-being, and respecting her and her family...wow! Well, this AM I received a phone call from the physician on call, Dr Kaur, who told me that Mom had "fainted" again, but it took about 2 minutes to revive her. The consensus seems to be that we are all going to get a neurologist on board, but each step of the way they have to consult with me as I don't want to have Mom take any invasive tests. TBD. After our chat, I phoned Annette, the ward administrator to get the skinny and the pulse on how Mom was and if I should be there with her now. Annette assured me that she is "back to her own sweet self" and in her opinion (after I pressed and pressed and asked in many different ways) she felt right now all is fine, no need to come today, but they will keep me posted. I then heard some more details. She was screaming in her sleep, "MommyMommyMommy!" and scratched her face with her fingernails as she cried. They went to her and noted she had wet herself, so they went to get her up to change her, when she lurched forward, was white, and then stiffened as in a seizure and they gave her some oxygen and she regained consciousness and appeared "normal" again. But this is 2 days in a row now. I'm worried - but basically helpless as this is so way beyond my scope of knowledge or personal history. Dr Kaur and I went over the DNR POLST and it is quite rigid and scary. Oh crap I hate this so much. Chuck did phone right on the dot, and we talked for a while, and he is very caring and thinks about things very clearly and well, but he's not ever "carved in stone". He listens too, imagine that!?! So, we have determined the next few steps, and let's hope it helps the situation, and possibly stops these syncope episodes - send protective healing prayers and light Mom's way if you are so inclined. I love her so much, I hope she knows it inside her core being and doesn't feel alone and afraid - maybe these episodes don't stay in her memory long enough to get to her, although she did mention, as I write I recall, about her feeling afraid all of a sudden. Shit - I have to remember to tell them about this, it may be of import, maybe not. I do love her so dearly. ##
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